About Usher Syndrome Ireland

Together we can bring hope for sight & sound.

Our mission: to support, advocate, & fund global research for Usher syndrome, a rare genetic condition causing a progressive loss of sight and hearing leading to deafblindness by mid-life. We are a non-profit run entirely by volunteers so all funds raised can go towards our mission.
CRO Reg. Number: 688621
Charity Reg Number: 20206288

#UsherSyndrome #USH #RareDisease #Disability #Research

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